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April 2014

The Good Fight

 

Lisa Salberg, HCMA's Founder and CEO, was featured on NBC News4 New York's segment, The Good Fight with Pat Battle.  The segment aired on Thursday, April 10, during the 5:00 PM Newscast.  For those in the New York City TV market, the show will be rebroadcast, with added footage, during the Sunday morning show. 

 

Click here to view last night's broadcast.

Registration Now Open

HCMA Meeting
 May 30 - June 1, 2014 

Registration is now open for the HCMA's 16th Meeting "Navigating the HCM Heart" to be held Friday, May 30, through Sunday, June 1, 2014 in Morristown, NJ. 

 

We are pleased that Morristown Medical Center will be our co-host and has offered their facilities for our Saturday meeting.

 

With a faculty comprised of the leading physicians and researchers in the field of HCM, we are excited to offer an informative meeting that will provide a unique blend of education and support for our members.

 

We have reserved a block of rooms at the Westin Governor Morris with one and two-night packages available.  Registration options and the weekend Agenda is available here.

 

A Guide to Hypertrophic Cardiomyopathy for Patients, their Families and Interested Physicians, 3rd Edition, by Barry J. Maron, MD and Lisa Salberg, Forward by Eugene Braunwald, MD

 

E-Reader edition and print version is now available.  Click here to purchase your copy. 

 

By purchasing through the HCMA website, 25% of the proceeds supports HCMA's programs and initiatives. 

  

Place your order today. 

Membership

Our primary objective at the HCMA is to provide support, advocacy and education to patients, their family members, the medical community, and the general public. We offer newsletters, meetings and symposiums, doctor referrals, new/improved treatment data, and, most of all, peer support to our members.

  

Due to increasing time limitations and funding constraints we have instituted several new procedures to ensure that each person who calls in receives the same attention to their individual situation that we have been providing for the past 17 years.  To this end, we now offer two options when calling in to seek information. 

 

1.  A 15-minute complimentary phone call with Lisa Salberg, our Founder and CEO, to go over the basics of your HCM diagnosis and the availability of Centers of Excellence/Programs.

 

2.  A paid membership to the HCMA will provide the opportunity to have a more comprehensive initial  conversation with Lisa Salberg, as well as subsequent calls throughout the year, which may include discussions on treatment options available, genetics, information about screening other family members, preparation for upcoming procedures, and any other issues that may arise. In a recent HCMA survey, 100% of the participants agreed that the value of these conversations is comparable to an average insurance co-pay.

 

We ask that you give what you can and encourage a monthly recurrent donation, which can be done online.  A great way to give and get is to ensure your membership is up to date! 

 


Hypertrophic Cardiomyopathy Association
322 Green Pond Road, Suite 200
PO Box 306
Hibernia, NJ  07842
973-983-7429
"Improving and saving lives of those with Hypertrophic Cardiomyopathy"
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