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A Chapter of the United Spinal Association
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Your Path To The Right Wheelchair
United Spinal Association's Mobility Map is the only web-based tool of its kind to help consumers navigate the often confusing and complicated process of purchasing the proper wheelchair and mobility equipment.
The Mobility Map was created to empower the consumer because it guides and educates them through the entire service delivery process of seating and wheeled mobility-so that they can take charge in choosing the best equipment to meet their needs.
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Model Systems Knowledge Translation Center:
Bladder Management and Spinal Cord Injury
MSKTC Releases Two New Factsheets on Bladder Management and Spinal Cord Injury
The MSKTC recently released two new factsheets, Bladder Management Options Following Spinal Cord Injury and Surgical Alternatives for Bladder Management Following SCI. Both factsheets were authored by Todd A. Linsenmeyer, M.D. and Steven Kirshblum, M.D. in collaboration with the MSKTC. Bladder Management Options Following Spinal Cord Injury provides information about common methods of managing one's bladder if it is not working correctly following SCI. The factsheet can be accessed here. Surgical Alternatives for Bladder Management Following SCI addresses two surgery options that can be used when other bladder management strategies have not worked, and can be accessed here. The factsheets are available on the MSKTC website in both English and Spanish and may be reproduced and distributed freely with appropriate attribution.
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SCIA Winter Benefit
It's Five O'Clock Somewhere!
Crystal Grand Banquets
Lemont, IL
February 20, 2016
Join us for a fun night of dinner, dancing, and friends!
If you are interested in sponsoring our event, making a donation, or purchasing tickets, please contact us at sciinjury@aol.com.
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Interested in getting
more involved with
SCIA?
Become a member of our association!
Are you Spinal Cord
injured?
Membership is
free to those who are
spinal cord injured.
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Meet Our Treasurer
Patricia, "Pat", Genardo, MBA, R.N., has been a registered nurse for over 40 years, focusing on Home Health Care for the past 30. Her roles in home care have been diverse and she now serves as Chief Executive Officer of Elite Care Management.
Pat continues to specialize in caring for individuals with high level spinal cord injury, allowing them to live at home with optimal quality of life.
Pat's passion for individuals with spinal cord injury precipitated her active involvement in SCIA. In Pat's case, "involvement" is true understatement. She has served as a director of SCIA, president and treasurer. She has served on planning committees for seminars and the annual golf outing wouldn't be complete without Pat driving around the course in the beverage cart!
Pat is a great "idea" person, too. She is the one who has come up with themes for benefits,themes like "It's Five O'Clock Somewhere"for the February 20, 2016 benefit. You can be certain that there will be some Jimmy Buffet music playing and decorations to make us feel like we're on the beach!
Pat is kind, generous and fun and SCIA is blessed to have her on board!
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End of the Year Contributions
SCIA is asking for your financial support and frequently when an organization asks for help, they focus on their most extraordinary accomplishments of the year or their big plans for the coming year. We could tell you about the super seminar we held this year, the increasing number of presentations to students of occupational and physical therapy, the new program on Prevention of Falls for senior citizens and the huge success of Beyond Boundaries, the outdoor adventure weekend for teams from rehab hospitals. They were all excellent accomplishments, but the real heart of what SCI does best is serving individuals, one person at a time, every day.
We serve moms, dads, wives, husbands and siblings when someone they love is newly injured and they feel lost, sad and afraid. We serve those who are paralyzed when they get home from rehabilitation and throughout their lives. We serve health professionals who are looking for help for their patients. We serve by helping to find answers to countless questions, by putting people in touch with peers, by encouraging them to attend support groups and keeping them
informed about activities, studies, surveys and research that they may be
able to take part in.
When someone sustains a spinal cord injury, whether from trauma or a medical condition, the result is the same. The injured person and the whole family are usually so shocked that they don't know how they will get through the day, much less what the future holds. When they have the opportunity to meet and talk with others who live with spinal cord injury, it helps give a little comfort and encouragement about living life with paralysis. It helps foster hope.
The ordinary things done every day for the individuals who are paralyzed may be the most extraordinary thing we do. It is definitely the heart of SCIA.
Please help SCIA continue to serve every person we can possibly help. Please visit our website at www.sci-illinois.org or click HERE to make a tax deductible contribution or send a check today and know that your gift will be used to further the good works of the association.
Sincerely,
Mercedes Rauen
Executive Director
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Bodies of Work and Reelabilities Present-Chicago Documentaries and Disability:
A Conversation, Friday December 4th, 6:30pm at Access Living
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An Incomplete Wheelchair Is No Wheelchair
An incomplete wheelchair is unusable, unsafe, and a blow to your mobility and independence.
Medicare is trying to make incomplete wheelchairs the norm for recipient wheelchair users with severe disabilities.
United Spinal Association has issued an updated position paper on Complex Rehabilitation Technology and an Action Alert. For more information click
here.
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It's Holiday Shopping Season and You Can Support SCIA!
Are you an Amazon shopper? Amazon will donate 0.5% of the price of your purchases to Spinal Cord Injury Association of Illinois whenever you shop
AmazonSmile. Visit
www.smile.amazon.com/ch/36-3149036 and select SCIA as your charity of choice. Its easy and won't cost you a penny!
SCIA is a member of the Community Health Charities of Illinois and the Combined Federal Campaign, an employee giving program. Campaigns are currently going on, so ask anyone you know who works for the federal government, including your mail carrier or anyone in the military, to consider designating SCIA as the recipient of their contributions. Our ID number for federal government employees is 48552.
Remember SCIA when making any memorial contributions or honoring birthdays, weddings, graduations, or other special occasions.
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New Mobility Magazine's Newsletter
New Mobility's December newsletter has some interesting articles this month. In this issue are articles titled, What Makes Us Happy, Wintertime Fun, Yoga Serenity, Buy Your First House, and Personal Assistant Pro Tips.
To view their newsletter click HERE
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Paraplegic Eric Saunders Loves to Flat Out Race Cars
Editor's Note: Twenty-three-year old Eric Saunders from Lakeville, Indiana, started riding a motocross bike when he was five years old. He loved the freedom of being able to go where he wanted to off-road and on-the-road. He said, "When I went over big jumps, I felt like I was flying. I like to run flat out, and I like to compete." But his world changed dramatically on August 28, 2010, when he was 17 years old. Eric says, "Now that I'm paralyzed, I needed to set a new goal and challenge myself to do something more with my life."
Click HERE
to read the whole article.
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Helping Hands: Monkey Helpers
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Hello from Helping Hands: Monkey Helpers,
Helping Hands service monkeys provide increased independence as well as companionship to adults living with mobility challenges at no cost to our recipients.
These past few months we have been very busy with applicants and our recent placements in California, Maine, and New York. Next month we're looking forward to another placement in California. We're now in our 4th quarter and we're seeking appropriate candidates for placements in 2016.
So please keep us in mind when you're thinking of referrals for your patients.
I would be more than happy to send you some of our videos to view as well as brochures which you can provide to your patients and families.
If you have any questions or would like to discuss a potential referral please
email
or call at (617) 787-4419 x 130.
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SportsAbilities
SportsAbilities is all about getting relevant information to people with disabilities whether that means access to resources, events to help people stay active, or news articles. There national calendar has events from all over the country but you can find out about specific events in your area by visiting the website and clicking on your state under the calendars tab.
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RIC Adaptive Sports Program
The RIC Adaptive Sports Program offers eleven different sports programs. They offer Archery, Boccia, Cycling/Road Racing, Wheelchair Basketball, Golf, Sled Hockey, Wheelchair Softball, Wheelchair Rugby, Military Sports Program, Caring for Kids, Junior Competitive Sports and Rock Climbing.
These programs are open to anyone with a disability.
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SCI Support Groups:
For those who are injured and their families. The more the merrier!
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Advocate Christ Medical Center
4440 W. 95th Street
Oak Lawn, IL 60453
Group resumes in March 2016
Rehab Gym - Room 026S Ground Floor
Contact Mercedes Rauen at SCIA
Marianjoy Rehabilitation Hosptial
26W171 Roosevelt Road
3rd Floor Gym
Wheaton, IL 60187
Group resumes in February 2016
Contact Monica Blaauw for meeting dates and locations
SCI Support Group Rockford IL
Van Matre Rehab Hospital
950 S. Mulford Road
Rockford, IL 61108
Outpatient Gym
Meets the second Wednesday of each month @ 6:00pm
Decatur Area Group!!
S.C.I.P Support Group
Heartland Health Care Center
444 W. Harrison Ave
Decatur, IL 62526
Thursday, December 3, 2015
Pot Luck Dinner
217-419-8855
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Hope Clinic Support Group
3137 Woodward St
Springfield, IL
Contact Christie Davis for more information
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SCIA Board of Directors
President Secretary
Monica Blaauw Nikki Weiland
Vice President Treasurer
Steve Burns Pat Genardo
Directors
Stacy Berendt
William Bogden
Lori Bravi
Michael Cafferty, J.D.
Christie Davis
Christin Falco
Colleen Glucksmann
Beth Gorman
Nupur Hajela. Ph.D.
Joseph Holloran
Ray Lee, M.D.
Ken Lumb, J.D.
Sarah Milcarek
Patricia Mucia
Chirag Shah, M.D.
Medical/Scientific Advisory Board
Roy Adair, M.D.
William Adair, M.D.
David Chen, M.D.
Michelle Gittler, M.D.
Jeffreu Oken, M.D.
Lawrence Vogel, M.D.
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The SCIA newsletter is an informational resource only. SCIA neither endorses nor recommends services provided by any of the sources listed therein.
SCIA Newsletter edited by Kimberly Houston.
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