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Awareness * Acceptance * Action * Advocacy
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Ticcing off 26.2 miles in the
2015 NYC Marathon
Our friend Sam Tischfield completed the New York City Marathon on Sunday, November 1. Sam is an NJCTS supporter and the son of Dr. Jay Tischfield, the world-renowned geneticist and director of the NJCTS Tourette Syndrome Cell and DNA Sharing Repository. He ran 26.2 miles to support the NJCTS-produced GreaTS movement on a global stage. The GreaTS is dedicated to breaking down social stigmas and creating awareness of Tourette Syndrome. Sam is truly one of The GreaTS!
Click here for more information about The GreaTS.
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Tim Howard scored $105,000 for NJCTS
US Men's National Soccer Team Goalkeeper Tim Howard won $105,000 for his favorite charity: NJCTS. Howard's sponsor, El Jimador, held a nation-wide sweepstakes in which 5 lucky winners had the opportunity to kick a penalty shot against Tim. If they scored, they won $20,000. If Tim blocked the shot, NJCTS won the money. El Jimador also ran a social media campaign asking fans to tweet using the hashtag #kickTS and for every hashtag used, El Jimador donated $1 to NJCTS. Thank you for all your tweets!
Click here to read more.
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Youth Advocate recognized for awareness efforts
Mike Hayden is an inspiration and recently he was recognized at the Bergen County 17th Annual "Salute to Champions" Breakfast. The program honors individuals who demonstrate a commitment to inclusion and changing attitudes. Bergen County Executive Jim Tedesco presented the award to Mike for his advocacy work on behalf of individuals living with Tourette Syndrome. As an NJCTS Youth Advocate, Mike has led many presentations in schools and hospitals throughout New Jersey. Congratulations, Mike! Thank you for all you have done for the TS community.
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NJCTS continues effort to educate medical professionals throughout New Jersey
Recently, NJCTS Youth Advocates Joe and Jacob Nowacki and NJCTS partner doctor Harvey Bennett, MD, led a moving Patient-Centered Medical Education presentation at Morristown Medical Center. After Dr. Bennett presented about Tourette Syndrome and the associated disorders to the 60 pediatric and neurology doctors in attendance, Joe and Jacob shared their own experiences with TS. They shared a little about diagnosis, their life now with TS, high school, and how they react to the environment around them. Through this powerful program, NJCTS Youth Advocates like Joe and Jacob are helping the medical community deepen their understanding of the needs of their patients with TS and associated disorders.
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Let's hear it for our brand new NJCTS Youth Advocates!
5 new Youth Advocates are now fully-trained to be peer educators, presenting about TS in schools while spreading awareness and promoting understanding. They were also trained to be patient educators, working with NJCTS partner doctors to provide Patient-Centered Medical Education presentations at hospitals, educating doctors and medical staff about TS. A very special thank you to some of our wonderful Leadership Academy coaches who assisted NJCTS Education Outreach Coordinator Gina Maria Jones with the training. Their guidance and support enabled our Advocates to add a personal touch to their presentations. Stay tuned as our new Youth Advocates educate their communities about TS!
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NJ Walks for TS program spreads across the state
Thank you, thank you, thank you to everyone who came out to any of the
NJ Walks for TS
events this year: Princeton in April, Medford Lakes in September, and Mendham in November. Our amazing groups of walkers, runners, and volunteers pulled off a great series of events, spreading Tourette Syndrome awareness in North, Central, South Jersey, and beyond. NJ Walks for TS benefits NJCTS Education Outreach Programs and because of your support and participation,
in 2015 NJCTS reached 82% more educators and students through our faculty in-services and Youth Advocate presentations than in 2014! We could not have done it without your support!
Click here for more information on NJ Walks for TS.
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New Jersey Education Association Convention
For the 14th year in a row, NJCTS had a booth at the NJEA Convention in Atlantic City to speak to the 40,000 teachers and support professionals in attendance. NJCTS's own Kelley Teabo and Daryl Ball were joined by volunteers Carolyn Baldwin, Fred Storer, and Carol Gray, answering questions about Tourette Syndrome and the services available through NJCTS--including our Education Outreach Program. Long-time NJCTS presenter Cheryl Ludwig, MA, CCC-SLP, had a great turnout for her workshop "Tourette Syndrome, OCD, and ADHD: Practical Strategies and Accommodations." We look forward to returning in 2016.
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NJ Chapter of the American Academy of Pediatrics School Health Conference
NJCTS recently had the opportunity to speak with more than 450 nurses and physicians about Tourette Syndrome at the New Jersey Chapter of the American Academy of Pediatrics School Health Conference in Somerset, NJ. Family Outreach and Volunteer Coordinator Leanne Loewenthal and Education Outreach Coordinator Gina Maria Jones provided educational materials and answered questions about our services. Nurses often alert parents when a child with TS is having trouble in the classroom and as part of our efforts to train all school staff about TS, we aim to make sure nurses as well as teachers have the empathy, knowledge, and understanding to help families access the services they need.
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Thank you to all our volunteers!
NJCTS would like to extend a huge THANK YOU to all of our amazing and dedicated volunteers who have helped us this year. We simply could not have done it without you!
NJCTS volunteers have contributed by planning and setting up
NJ Walks for TS
events across the state, photographing at events, leading Youth Advocate presentations in schools and hospitals throughout the state, staffing tables at conferences, putting together mailings, and helping out in the NJCTS office in Somerville.
Our volunteers are valuable partners in our effort to advocate on behalf of the Tourette Syndrome community. To learn how you can help out, visit
www.njcts.org
. Thank you so very much!
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Make NJCTS part of your year-end giving
Please make us part of your year-end giving and join us in our efforts to improve the daily lives of individuals and families living with Tourette Syndrome. Please visit our website at
www.njcts.org
to donate online, call 908-575-7350 to donate by phone, or mail a check to NJCTS, 50 Division Street, Suite 205, Somerville, NJ 08876.
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Rutgers TS Clinic is now recruiting!
The Rutgers University TS Clinic offers a 10-week, group-based program beginning in February that aims to help children build resilience and develop the skills necessary to better navigate life with tics and associated disorders. The group is open to children and adolescents ages 7-17 with TS or chronic tics. Click here to register and to learn more.
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Help us improve our Support Groups
Daily, NJCTS receives phone calls from individuals and families dealing with Tourette Syndrome and associated disorders. One thing all those calls have in common is that people want to be connected to other individuals who deal with the same successes and challenges of living with TS. They seek community, connectedness, networking, and support. Earlier this year we launched our Call-in Support Groups which connect families over a conference call line once a month on a weekday evening from 7:30 pm to 8:30 pm. We want to know how we can improve our support groups to best serve you. Let us hear from you!
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Help us improve our Physicians Referral List
NJCTS families have played a critical role in building our Physicians Referral List over the years. If you are working with a medical professional that you would recommend, please let us know! Your recommendations will help others, especially newly-diagnosed families, access great doctors with an understanding of TS and associated disorders.
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Applications for the
2016 NJCTS Tim Howard Leadership Academy are now available.
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When you do ANY shopping at AmazonSmile, Amazon will donate 0.5% of the purchase price to NJCTS. Click the image above, bookmark it for future use, and support us every time you shop.
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Want to share your story? Write for our blogs!
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Call us at 908-575-7350
NJCTS is available for help when you need it so call us at 908-575-7350. Call us and take advantage of our services and support.
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Wednesday Webinars are brought to you by webinar coordinators Marty Butterfield and Kelley Teabo
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TIC GENETICS STUDY CONTINUES AT RUTGERS UNIVERSITY
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