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Issue: January 2014
Welcome to Epilepsy News brought to you by the Epilepsy Foundation of New Jersey. We pride ourselves in sending you the most up-to-date information about epilepsy events, conferences, and issues that are important to you.
Be sure to check this email, our website and thetrainingcalendar.org for information on rescheduled events.
You may also find an archive of past issues and additional information at www.efnj.com. | |
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National Walk for Epilepsy
Are you planning on attending the National Walk for Epilepsy on March 22, 2014 in Washington D.C.? If so, we invite you to join our Epilepsy Foundation of New Jersey team "Jersey Strong!" This will be a great way for you to meet others from New Jersey! To register visit www.walkforepilepsy.org and join team "Jersey Strong!"
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Epilepsy Foundation of NJ
is a state-wide, non-profit charitable agency dedicated to helping to improve the quality of life for people affected by epilepsy and their loved ones. More "About Us"
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Our affiliates:
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SAVE THE DATE...
The 3rd Annual Paint the Pony Purple will be held on March 30, 2014 1:00pm-5pm at
The Stone Pony in Asbury Park!
Visit our facebook events page!
More details to follow.
Thank you to the Cake Boss's Carlo's Bakery and Cameo Cakes for their dessert donations and to The Molly Pitcher Inn and the Lakewood Blue Claws for their generous silent aution items.
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We are excited to be partnering with Candlelight Concerts for Epilepsy Awareness, Foul Rift Productions and Four Sisters Winery to promote a two-day festival benefiting the Epilepsy Foundation of New Jersey. Muses in the Vineyard is a festival of music, of the women, by the women and for EVERYONE.
When: Saturday May 17th 1:00pm - 7:00pm (doors at noon) Sunday May 18th 12:00pm - 6:00pm (doors at 11:00 a.m.)
Where: Four Sisters Winery 783 County Route 519 Belvidere, NJ 07823
Tickets: Early Bird Pricing - $12.50 to $30.00
Performers
| Saturday | Sunday | Christine Havrilla | Red Molly | Sarah Ayers Band | Amy Speace | Trina Hamlin | Danielle Miraglia | Sarah Blacker | Maura Kennedy | Regina Sayles | Jess Klein | Kathy Moser | Shawnee Kilgore | Camela Widad | Mara Levine |
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2014 Epilepsy Scholarship Program
The Epilepsy Foundation of New Jersey is pleased to announce the existence of a scholarship program for New Jersey high school seniors who have epilepsy. We anticipate offering at least three $1,000 scholarships.
New Jersey high school seniors with epilepsy who plan to attend a college or university are eligible. Academic achievement, participation in activities and financial need will be considered. The extent of a student's disability(s) will be taken into account as well, so that s/he need not be near the top of her/his class to qualify. Final awards will be made by the Epilepsy Foundation of New Jersey, which reserves the right not to make any awards.
Click here to download the application.
Applications and supporting documents are due April 25, 2014. Should you have any questions, please contact Andrea Racioppi at the (800)336-5843 or by email at [email protected].
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It's Never Too Soon to Plan for Camp!!
The Epilepsy Foundation of New Jersey's camp schedule for 2014 is confirmed and preliminary planning is underway. If you have not had the opportunity to join us for a Camp experience maybe 2014 will be the year for you. Our Camp experiences start at age 8 and continue through adult life. Camp activities vary from camp to camp, but include activities that are age appropriate, promote independence and provide opportunities for making friends. Deadlines for Campership opportunities through the Division of Developmental Disabilities and the Department of Children and Families have been moved up for 2014 so we encourage you to apply early.
Super NOVA (Age 29 and Up)
March 14-16, 2014
September 19-21, 2014
YMCA Camp Ockanickon
1303 Stokes Rd.
Medford, NJ08055 (Burlington County)
Bounce Out the Stigma Basketball Camp (Age 8 - 21)
Ocean County
July 21-25, 2014
9:30-3:00pm
Toms River Intermediate South
1675 Pinewald Rd.
Beachwood, NJ 08722
Bergen County August 11-15th
9:30-3:00pm
St. Nicholas Greek Orthodox Church
467 Grandview Ave.
Wyckoff, NJ 07481
Camp NOVA (Ages 12-18, 19-28)
August 3 - 9, 2014
Linwood McDonald
YMCA 1 Flatbrook Rd.
Sandyston, NJ 07826, NJ (Sussex County)
For additional information and/or to be placed on our mailing list please call Jenna Andolora at 800.336.5843.
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School Nurse Training Program
The School Nurse Training Program is a continuing education training program designed to provide the school nurse with information, strategies and resources that will enable him/her to better manage the student with seizures by: supporting positive treatment outcomes, maximizing educational and developmental opportunities, as well as ensuring a safe and supportive environment. Each training is 3.5 hours long and FREE for all school nurses. Nurses will receive 3.2 continuing education units after completing the training.
Managing Students with Seizures
April 16, 2014
4-7pm
Dr. Megdad will be co-presenting
Centrastate Medical Center
Star and Barry Tobias Ambulatory Campus
Conference Center Auditorium
901 W. Main Street Freehold, NJ 07728
Continuing Education Units available.
There will a $35.00 fee for a light meal.
Please fill out the attached registration form and submit the $35.00 fee to:
Student Health Awareness Center
901 West Main Street
Freehold, NJ 07728
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Are You a Parent of a Child with Epilepsy?
EFNJ is holding parent focus groups throughout the state. In these focus groups we will be gathering information on programs and services that are needed in NJ. We would love your input. If you are a NJ parent of a child with epilepsy age 21 or younger please contact Jenna Andolora at 800.336.5843 or [email protected] with interest in attending. See below for dates and locations:
February 6, 2013
6:30-8pm
Parsippany, NJ
February 20, 2014
6:30-8pm
Barrington, NJ
We will also be holding a Spanish speaking parent focus group as well. Dates and location will be provided at a later date.
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NJ High School Senior Raises Money and Awareness
Morgan Leaf a senior at Our Lady of Mercy Academy, Newfield, promoted epilepsy awareness in November by selling purple bracelets. Morgan raised $836 which was donated to EFNJ. Morgan attached an epilepsy fact to each bracelet to spread awareness! Morgan, a Jersey Pride All-Star cheerleader has recently committed to Alderson Broaddus University where she will be a part of their acrobatics and tumbling team. Thank you Morgan!
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Eisai Announces Launch of Antiepileptic Drug Fycompa in U.S.
Eisai Co., Ltd. (Headquarters: Tokyo, President & CEO: Haruo Naito, "Eisai") announced today that on
January 2, 2014, its U.S. subsidiary Eisai Inc. launched the AMPA receptor antagonist Fycompa™
(perampanel), a first-in-class antiepileptic drug (AED) discovered and developed in-house, in the United States as an adjunctive therapy for partial-onset seizures with or without secondary generalized seizures in patients with epilepsy aged 12 and older.
Fycompa is a highly selective, noncompetitive AMPA receptor antagonist discovered and developed by
Eisai. With epileptic seizures being primarily mediated by the neurotransmitter glutamate, the agent works as a first-in-class AED that reduces neuronal hyperexcitation associated with seizures by targeting glutamate activity at postsynaptic AMPA receptors. It is approved in more than 35 countries worldwide,mostly in Europe and North America, and has been already launched in Canada and in a number of European countries. In the United States, following approval by the U.S. Food and Drug Administration (FDA) in October 2012, Fycompa was recommended to the U.S. Drug Enforcement Administration (DEA) for scheduling classification under the country's Controlled Substances Act and subsequently placed as a Schedule III drug.
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Are You Interested In Taking Part In This Study???
Vince & Associatesis looking for people with epilepsy to be part of a study to evaluate the bioequivalence of generic to branded medications. If you are a person with epilepsy between 18 and 55 please click http://bit.ly/VinceStudy to see if you qualify. Your travel, room and board will be paid and you will receive approximately $4,000 for participation. Please act now.Go to http://bit.ly/VinceStudy for more information.
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