In the upcoming months, EFNJ will be holding several parent focus groups throughout the state. In these focus groups we will be gathering information on programs and services that are needed in NJ. We would love your input. If you are a NJ parent of a child with epilepsy age 21 or younger please contact Jenna Andolora at 800.336.5843 or [email protected] with interest in participating.

 

 

 

  

  

The Epilepsy Foundation of New Jersey's camp schedule for 2014 is confirmed and preliminary planning is underway.  If you have not had the opportunity to join us for a Camp experience maybe 2014 will be the year for you.  Our Camp experiences start at age 12 and continue through adult life.  Camp activities vary from camp to camp location but include activities that are age appropriate, promote independence and provide opportunities for making friends including new experiences.  Deadlines for Campership opportunities through the Division of Developmental Disabilities and the Department of Children and Families have been moved up for 2014 so we encourage you to apply early.

 

Super NOVA (Age 29 and Up)

March 14-16, 2014

Medford, NJ (Burlington County)

 

Bounce Out the Stigma Basketball Camp (Age 8 - 21)

 

Ocean County

July 21-25, 2014

9:30-3:30pm

Toms River Intermediate South

1675 Pinewald Rd.

Beachwood, NJ 08722

 

Bergen County

Dates and location to be announced

 

Camp NOVA (Ages 12-18, 19-28)

August 3 - 9, 2014

Branchville, NJ (Sussex County)

 

Super NOVA (Age 29 and Up)

September 19-21,2014

Medford, NJ (Burlington County)

 

For additional information and/or to be placed on our mailing list please call Jenna Andolora at 800.336.5843.

  

  

                  

  

  

 

At Northeast Regional Epilepsy Group researchers test new anti-epileptic medications and diagnostic and surgical techniques. Patients who participate in this gain access to new treatments provided at no cost to them.

 

If your child has generalized or partial epilepsy, There are 2 new open-label studies to determine safety, tolerability, and efficacy of oral Lacosamide as Adjunctive therapy. There are ongoing clinical trials for adults as well who has refractory partial epilepsy. For more information visit www.epilepsygroup.com. You may contact Munazza Malik,MD, Research Coordinator, at [email protected].

 

 

  

  

The School Nurse Training Program is a continuing education training program designed to provide the school nurse with information, strategies and resources that will enable him/her to better manage the student with seizures by: supporting positive treatment outcomes, maximizing educational and developmental opportunities, as well as ensuring a safe and supportive environment. Each training is 3.5 hours long and FREE for all school nurses. Nurses will receive 3.2 continuing education units after completing the training.

 

To schedule, contact Jenna Andolora to schedule 800.336.5843 or [email protected]

 

Click here to view our Spring/Summer training dates and locations.

  

  

  

 

FRN Food Network has had great success in starting several local Cooking Classes available to various ages throughout the state.  We are currently in Morris and Ocean Counties.  We are looking to expand our efforts but are looking to see where the interest is.  Cooking Classes include a safe, fun environment in a kitchen setting under the direction of certified instructor.   Kitchen instruction is age appropriate and is based on input and goals of the individuals who attend. 

 

 

Please contact Deb O'Chat at 732-262-8020 if you are interested in having us start a cooking club in your area. 

 

 

  

People with epilepsy could be helped by new research into the way a key molecule controls brain activity during a seizure.

  

                   

  

Science Daily Oct. 31, 2013 - Researchers at Johns Hopkins say they have found that a gene already implicated in human speech disorders and epilepsy is also needed for vocalizations and synapse formation in mice. The finding, they say, adds to scientific understanding of how language develops, as well as the way synapses - the connections among brain cells that enable us to think - are formed.