News from APS Foundation of America, Inc

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In This Issue

Cafe Press Update!

June Fundraisers: Dragonfly Earbud Headphones

Twins: Strokes At 26 Within Months Of Each Other

APS Awareness bracelets for sale!

FlowerPetal Shop

FDA approves Kcentra for the urgent reversal of anticoagulation in adults with major bleeding

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Cafe Press Update!

Over the next few weeks we will be releasing new designs in our Cafe Press Store. This is just one of many to come.

100% of the profits from these products will go to the APS Foundation of America, Inc. APS Stands for Antiphospholipid Antibody Syndrome, which is a blood disorder that causes blood clots, strokes in young people and multiple miscarriages in women. Founded in 2005, the APS Foundation of America, Inc. is dedicated to fostering and facilitating joint efforts in the areas of education, public awareness, research and patient services in an effective and ethical manner. Thanks for looking!

Needing to make a large bulk order? Please email us and we can set up a special price for you. If you want this design on an item that is not located in the store, please email us.

Check out our store online at www.cafepress.com/apsfoundation to buy APS gear and help the APSFA at the same time!

News from the APS Foundation of America, Inc.

Spring / Summer 2013 Volume of "Antiphospho...What??"

Greetings!

The Spring / Summer 2013 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol27SprSum13.pdf

The next volume will be coming out mid November 2013.

Please let us know if there are any topics that you'd like our Medical Advisers to cover in their articles. We try to request topics that people are emailing about or that are discussed on our the forum. So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisers.

We are still in need of patient stories (esp about Men and Teens / Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: [email protected] .

Please follow our current guidelines when submitting an article:
� Send your story/article to [email protected]
� Patient stories and most articles should be approx 500-750 words long and contain a title
� Articles should be written at a 5th-8th grade reading level
� Please try to include a picture when submitting a patient story
� Patient stories should read like an autobiography-generally from diagnosis to present time, but it doesn't have to

Please use previous patients stories as your guideline. They can be found here: http://www.apsfa.org/newsletters.html.

If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.

We could also use articles written by medical professionals or medical students on APS & APS related topics, like Lupus. Please contact us if you are interested. This is a good opportunity for you to get your name out there.

Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm

June Fundraiser: Dragonfly Earbud Headphones

Earbuds

During the month of June anyone who makes a donation of $35.00 or more to the APSFA will receive a pair of adorable dragonfly earbud headphones.

As you may know, the dragonfly is the official symbol we have chosen to represent Antiphospholipid Antibody Syndrome much like the butterfly symbolizes Lupus.

Donations must be made through the donate button on our website using paypal or else by check using the donation coupon on page 8 of this newsletter. Donations must be received or postmarked by June 30 to qualify for the earbuds and please only one per household.

The headphones are very nice quality and feature adorable dragonflies on each ear bud as well as one on the cord. There are 3 different sized, flexible, acrylic inserts which makes them customizable for different sized ears. The earbuds also come with a zippered case with a key ring attached for convenient storage. The cord is 30 inches and the headphone jack is a standard 3.5 mm-so they are perfect for MP3 players and most smart phones!

Twins: Strokes At 26 Within Months Of Each Other

Twin women living in Arizona suffering strokes within nine months of each other is rare enough; add to that the fact that the women are only 26 years old, and the story is just incredible. (Again, these were dismissed as migraines at first.)

APS Awareness bracelets for sale!

The bracelet on the right is approx 7 1/2 inches long, is sterling silver plated and features 5 heart charms as shown. This bracelet comes with a gift box. The cost for this beautiful awareness bracelet is $15.75.

The bracelet on the below is approx 7 inches long but is made of a stretchy band and will stretch to fit most wrists. The charm is beautifully plated with sterling silver and features a burgundy awareness ribbon. This bracelet is a great alternative to the popular silicone ones. The cost for this bracelet is $7.50.

To order, go to our fundraiser page: http://www.apsfa.org/fundraiser.htm

FlowerPetal Shop

This time of year is a perfect time to send fresh flowers to your loved ones!

The APS Foundation of America, Inc. has their own flower store at: http://apsfa.flowerpetal.com

Now when you order flowers at: http://apsfa.flowerpetal.com, 12% of each purchase goes to the APS Foundation of America, Inc.

There is no additions fees for delivery - including same day delivery. This means you can save up to $12.95 compared to other online florists. So every purchase puts a smile on many faces - including yours!

Now is a great time to start sending out your various season & special arrangements. So check out our site & support the APSFA at the same time.

Tell everyone about http://apsfa.flowerpetal.com and help us make a difference.

FDA approves Kcentra for the urgent reversal of anticoagulation in adults with major bleeding

The U.S. Food and Drug Administration today approved Kcentra (Prothrombin Complex Concentrate, Human) for the urgent reversal of vitamin K antagonist (VKA) anticoagulation (such as warfarin) in adults with acute major bleeding. Plasma is the only other product approved for this use in the United States.

Read More: http://1.usa.gov/ZMRbvm

Once again, we hope this newsletter finds you in the best of health and with a perfect INR level.

Sincerely,

Tina, Heidi & Dana

APS Foundation of America, Inc

The information in this newsletter is not intended to replace standard doctor-patient visits. All information should be confirmed with your personal doctor. Always see the advice of a trained physician in person before seeking any new treatment regarding your medical diagnosis or condition. Any information received from the APS Foundation of America, Inc. through this newsletter is not intended to diagnose, treat, or cure and is for informational purposes only.

If you have a medical emergency, please call your doctor or 911 immediately.

All of the information in this newsletter is the property of the APSFA and � of the authors.