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SCIA's 11th Annual Golf Outing was a BIG success!
Thank you to all who joined us on Wednesday, July 29, 2015 for our annual golf outing! A special thank you to our sponsors:
Associates in Rehab Medicine
National Seating and Mobility
Congratulations to our main raffle winners!
Thank you to everyone who purchased tickets and made contributions to support the association!
It was a beautiful day for a golf outing and a good time was had by all! We are looking forward to seeing you next year!
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Bank of America Chicago Marathon
Saturday, October 11, 2015
Mobility Expo
Tinley Park Convention Center
Saturday, November 14, 2015 10 am-4 pm
SCIA Winter Benefit
February 20, 2016
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ACCESSIBLE VAN!
2005 Ford E150 Econo Club Wagon with Braun AUTOMATIC LIFT!
41,500 miles
$14,700
Runs extremely well!
Contact Mary
Munoz-Mansfield
Please reference emails "Van For Sale"
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Interested in getting
more involved with
SCIA?
Become a member of our association!
Are you Spinal Cord
injured?
Membership is
free to those who are
spinal cord injured.
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Free Physical Therapy
WHAT IS THE NEURO CLINIC?
The neuro clinic is a FREE 8 week physical therapy clinic for persons with neurological disabilities. Weekly sessions are conducted by 2 nd year-DPT students with PT faculty supervision.
WHO CAN PARTICIPATE? Any adult with a neurological diagnosis who has permission from their physician.
WHEN IS THE NEURO CLINIC? The neuro clinic will be on Tuesday afternoons for 8 weeks: August 25 through October 13th for two hours. Sessions run from 1:00 - 3:00pm.
WHERE IS THE NEURO CLINIC? The neuro clinic is located on the campus of Rosalind Franklin University at 3333 Green Bay Rd in North Chicago, IL.
WHAT ARE SOME PROGRAM SPECIFICS? Each volunteer participant will work with a small group of two to four 2nd year physical therapy students supervised by licensed Physical Therapist faculty members. The students will conduct a physical therapy evaluation on the first session and then work with the volunteer on goal development and a treatment plan to proceed over the remaining sessions.
HOW DO I SIGN UP TO PARTICIPATE?
If you have questions or would like to sign-up to participate please contact: Nupur Hajela, PT, PhD Phone: 847-578-3315 Neuro Clinic Coordinator E-mail:
nupur.hajela@rosalindfranklin.edu Betty Melton Phone: 847-578-3307 Sr. Administrative Assistant. Please note that space is limited in this popular program and there was a waiting list for last year's clinic.
Early sign-up is encouraged. Rosalind Franklin University of Medicine and Science Department of Physical Therapy 3333 Green Bay Rd. North Chicago IL 60064 847-578-3307 (main number)
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Dive Heart
Unlocks the therapeutic experience of scuba diving
The Dive Heart mission is t
o build confidence, independence and self-esteem in the lives of children, adults and veterans with disabilities through scuba diving, scuba therapy and related activities.
The Dive Heart vision is t
o instill the "can do" spirit in participants, inspiring them to take on challenges that they may not have considered before. Using zero gravity and the adventure paradigm, we help participants believe that if they can scuba dive they can do anything.
Visit their website for more information, and how you can learn to scuba dive! www.diveheart.org
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Dare2tri "Why I Tri" Essay Contest
Enter the Dare2tri "Why I Tri" Essay Contest, Fueled by BP for the chance to win a VIP experience at the ITU World Triathlon Grand Final Championships in Chicago on Friday, September 18!
Youth ages 6-18 with a physical disability or visual impairment are invited to submit an essay of approximately 500 words answering the statement: "Why I Tri." Participants may interpret "Why I Tri" however they please, as long as it is explained in the essay. For example it can be why you tri in sports, school, at home, etc.
Essay submissions are due by September 4. Please send completed applications to Keri Serota (
keri@dare2tri.org
).
Click
HERE
to view the application.
The top-10 essay finalists will earn a VIP experience at the ITU World Triathlon Grand Final Championships in Chicago on Friday, September 18. Finalists and a guest will view the Elite Paratriathlon World Championships beginning at 7 am from BP's VIP tent located at Buckingham Fountain. Finalists are also welcome to attend an athlete meet-and-greet at the Dare2tri tent following the race.
The grand prize winner will be awarded an adaptive bike.
The contest will be judged by Dare2tri staff and coaches, and representatives from BP.
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Model Systems Knowledge Translation Center
Spinal Cord Injury (SCI)
40 Years of SCI Research
James Krause, PhD
, research scientist of the
Southeastern Regional Spinal Cord Injury Care System
, and the staff of the NIDILRR-funded project on
Participation, Subjective Well Being, Health, and Spinal Cord Injury (SCI): A 40-Year Longitudinal Study
, held a
celebration of 40 years of SCI research
on June 7, 2015. The celebration brought together more than 50 participants with SCI who averaged over 40 years since SCI onset, including 10 who were 50+ years post injury. The study, initiated in 1973 by Nancy Crewe, PhD, is the longest standing longitudinal study of SCI. When the study began, living 40 years with SCI was viewed as unattainable, yet there were 26 people at the event who have lived more than 40 years with SCI. The knowledge gained from the study and its participants has led to a better understanding of SCI and the changes that occur as people age with SCI. Read more
here
.
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Evaluating the Effectiveness of a Mobile Game to Improve
Self-Management Skills of Teens and Young Adults
with SCI and other Spinal Cord Impairments
SCI Hard is a mobile game designed to help teens and young adults with spinal cord injury (SCI) and other spinal cord impairments improve their ability to manage their health and interact with others. The game can be downloaded to Apple or Android mobile devices and takes about five hours to complete. The goal of the game is for players to be able to manage their health and prevent complications so they can achieve independence, get out into the community, and save the world.
We are currently recruiting research participants, 13 to 29 years old, with SCI, spina bifida, or related impairments of the spinal cord, in order to play and evaluate the game. Participants will complete a set of online surveys three times over three months and will be expected to download and play their assigned mobile game (either SCI Hard or another game). If they complete all parts of the study, they will be eligible to earn up to $100.
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SportsAbilities
SportsAbilities is all about getting relevant information to people with disabilities whether that means access to resources, events to help people stay active, or news articles. There national calendar has events from all over the country but you can find out about specific events in your area by visiting the website and clicking on your state under the calendars tab. Visit
www.sportsabilities.com
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RIC Adaptive Sports Program
The RIC Adaptive Sports Program offers eleven different sports programs. They offer Archery, Boccia, Cycling/Road Racing, Wheelchair Basketball, Golf, Sled Hockey, Wheelchair Softball, Wheelchair Rugby, Military Sports Program, Caring for Kids, Junior Competitive Sports and Rock Climbing.
These programs are open to anyone with a disability.
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Adaptation to Spinal Injury Research Project
Researcher Daniel Read from York St. John University is doing a research project looking at adaptation to spinal injury with the aim of producing some self-help materials. Participants need to be over 18 and have to complete a short questionnaire electronically. Visit https://adaptationtosci.wordpress.com/
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RIC Survey for Travelers with Disabilities
This study focuses on three aspects of airline travel for people who are non-ambulatory:
1- Using a boarding chair or lift system to get down the aisle of a plane and into the airline seat.
2- Sitting on a standard economy airline seat for the duration of greater than a two-hour flight.
3- Transporting and protecting the wheelchair that is stowed in the belly of the aircraft.
Data collection will include consumer input, participation in a simulated boarding process assessing passenger and flight attendant posture and safety, pressure mapping and postural tendencies after transferring into an airline seat, and detailed methodology of manual and powered wheelchairs being transported to and stored in the belly of the aircraft.
The outcomes will provide design concepts and parameters of assistive technology to improve the safety, comfort, and quality of the flight for the passenger and wheelchair.
The hands-on research is being done at RIC with assistance from airlines using O'Hare International Airport. To provide input about experiences travelling from a wheelchair user's perspective, please use the following link.
https://www.surveymonkey.com/r/airtravel_survey
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Pain Management Study
Research assistant Ashleigh Quinn at Kessler Foundation in West Orange is recruiting participants for a study for folks who are experiencing chronic pain after spinal cord injury. Briefly, the official title of the study is "Education Interventions for Self-Management of Pain Post-SCI: A Pilot Study," and the purpose of this study is to look at two different types of education programs to see if they can reduce the extent that your chronic pain interferes with your daily life and overall well-being.
Your participation in the study would last for about 10 weeks and include:
1-
Speaking with our physician to determine if you are a good candidate for the study
2-
Participating in a series of 4 education classes that will take place at Kessler in West Orange-You can participate via a conference call or by attending in-person. The classes will occur once per week and last for 2 hours each session
3-
Completing homework assignments (based on the material covered in class), and completing a questionnaire daily about your activities for that day
You can be compensated up to $200 dollars for your participation in this study. We are looking for folks who are experiencing moderate-to-severe chronic pain (pain that has lasted for more than 3 months), and whose injury occurred more than 1 year ago.
If this is something you think you may be interested in, or you'd like to hear more information on, feel free to reach out to Ashleigh at
AQuinn@KesslerFoundation.org or by phone 973-324-3548.
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RIC LIFE Center Membership: Patient and Family Education Resources
Patient and family education is a critical component of rehabilitation. As a result, RIC created Learning, Innovation, Family, Empowerment (LIFE) Center. Benefits to LIFE membership include access to personal reading lists, quick access to Patient and Family Education resources, updates on new resources, research, and discoveries, and information to RIC education programs, events and news. For more information go to www.lifecenter.ric.org
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New Access Guide Explores Washington State Parks
If you've dreamed of exploring Olympic and Mount Rainier National Parks, but thought you'd be left at the sidelines because you use a wheelchair or just get around a little slower, then pick up a copy of
Barrier-Free Travel; Olympic and Mount Rainier National Parks for Wheelers and Slow Walkers ($5.99, C&C Creative Concepts), and prepare to discover these Washington state gems.
Penned by accessible travel expert Candy Harrington, this new travel guide highlights accessible trails, sites, and lodging options in Olympic and Mount Rainier National Parks.
Filled with useful access information the book also includes:
- Detailed Photographs of the Accessible Rooms
- Information on Accessible Ranger-Led Tours
- Barrier-Free Camping
- Locations of Loaner Wheelchairs
- Special Access Passes and Permits
- Accessible Lodging and Trails Near the Park Entrances
- Scenic Drives and Accessible Viewpoints in the Parks
- Details About Upcoming Access Improvements
Known as the guru of accessible travel, Candy Harrington has covered this niche exclusively for the past 19 years. She's the founding editor of Emerging Horizons and the author of several accessible travel titles, including the classic, Barrier-Free Travel: A Nuts and Bolts Guide for Wheelers and Slow Walkers. She also blogs regularly about accessible travel issues at
www.BarrierFreeTravels.com.
Barrier-Free Travel; Olympic and Mount Rainier National Parks for Wheelers and Slow Walkers ($5.99, print and Kindle,ISBN: 978-0692499870;) is available at
www.BarrierFreeOlympic.com.
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SCIA offers
Think First, a national brain and SCI prevention program. Volunteers who are spinal cord injured go to local schools, day camps, libraries, community centers, and other groups to offer prevention information and discuss their personal experiences. Now is a great time to schedule your injury prevention program as we prepare our children to go back to school. The program is presented free of charge.
If you would like to learn more, or schedule a program, contact SCIA.
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SCI Support Groups:
for persons with injuries & families
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Advocate Christ Medical Center
4440 W. 95th Street
Oak Lawn, IL 60453
Rehab Gym - Room 026S Ground Floor
Tuesday, August 25, 2015 @ 5:00pm
Contact Mercedes Rauen at SCIA
Marianjoy Rehabilitation Hosptial
26W171 Roosevelt Road
3rd Floor Gym
Wheaton, IL 60187
Tuesday, August 25, 2015 @ 6:00pm-7:30pm
GLASA (Great Lakes Adaptive Sports Association) representative will speak about their programs and services.
Contact Monica Blaauw for meeting dates and locations
SCI Support Group Rockford IL
Van Matre Rehab Hospital
950 S. Mulford Road
Rockford, IL 61108
Outpatient Gym
Meets the second Wednesday of each month @ 6:00pm
August: Aviators outing
September: Adaptive adventures!! Details to follow about a camping trip
**New Decatur Area Group!!
S.C.I.P Support Group
Heartland Health Care Center
444 W. Harrison Ave
Decatur, IL 62526
217-419-8855
August Meeting: Contact Jeff Brinkley for date and time
Guest Speaker: United Access Champaign
on how to go about getting a new vehicle, converting vehicles, and other medical equipment information
Refreshments will be served
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Hope Clinic Support Group
Sponsored by United Access
2924 N. Dirksen Pkwy
Springfield, IL
Contact Christie Davis for more information
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Bank of America Chicago Marathon October 11, 2015
Our SCIA Bank of America Chicago Marathon team has started fundraising!
If you would like to make a donation in support of Team SCIA, please use the link below. Thank you!
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Calling all Amazon Shoppers!
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The SCIA newsletter is an informational resource only. SCIA neither endorses nor recommends services provided by any of the sources listed therein.
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