210.657.4968
7155 Oakridge Drive
San Antonio, Texas 78229
Great Lakes Regional Coordinator
Dear Members,

Are you looking for a way to increase your involvement with YOUR Registry? The position of Great Lakes Regional Coordinator for the Chromosome 18 Registry is  open for election to a 2 year term. We are looking for a volunteer from Michigan, Indiana, or Ohio to fill this position.  The duties of the coordinator are as follows:
 
The Responsibilities of the Regional Coordinators shall be:

1. See that at least one social event for regional families is held each year.

2. See that at least one educational event in the region is presented each year (lecture, health fair exhibit etc.).

3. See that at least one fundraising event in the region is held each year.

4. Coordinator will send welcome note of introduction to new families.

5. Regional coordinators will be aware that they are ambassadors of the organization at all times and lead by example.

6. Regional coordinators will encourage others to participate in organizational functions such as conferences, get-togethers, and fundraisers.

7. Report at full Board of Directors meeting on regional activities of the past year.  (This may be done in person, by proxy or by written report.)

8. Failure to accomplish these goals will indicate the coordinators desire to resign the position.

9. The Coordinator may appoint a committee or individual state coordinators, with the responsibilities of each person as the coordinator sees fit (members will be approved by the board of directors).
 
If you are interested in volunteering or learning more, please send a letter of intent to our Vice President of Member Relations, Kathy Borello, at [email protected].  Thank you for your ongoing support. 

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Do you have a special skill or talent that you would love to share?  Please contact the Registry office at [email protected].  We are ALWAYS looking for volunteers!


Please consider the Registry for your  year-end giving.  Donations help provide funding for programs and services for our families.  This includes our groundbreaking research into making chromosome 18 abnormalities the first treatable chromosome condition. 

The Chromosome 18 Registry and Research Society is a 501(c)3 tax-exempt organization and your donation is tax-deductible.

Sincerely,
 
Nichole McVicker
Director of Operations
The Chromosome 18 Registry & Research Society
[email protected] 
(210) 657-4968
 
 
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