Specimen Science: Ethics and Policy Implications, 

with Lunchtime Talk on "Biospecimens and the NPRM"

November 16, 2015 8:30 AM - 5:30 PM

Austin Hall North (100) until 12:40 PM, Langdell Hall South, Room 272 after 12:40 PM, Harvard Law School, Cambridge, MA

Many important advances in human health depend on the effective collection, storage, use, and sharing of biological specimens and their associated data. However, recent controversies involving specimen-based research have raised important questions about ownership, data-sharing, privacy considerations, group harms, and standards for responsible specimen stewardship. 

 

Please join us for a symposium to discuss the key ethical and policy issues raised by genetics and other research involving human biological materials, covering the entire trajectory from specimen source to new discovery. The experts at this day-long event will cover key topics, such as historical, legal, and international perspectives; donor attitudes, researcher perspectives, and institutional considerations; broad vs. specific informed consent; privacy, ownership, and control; use of specimens collected through mandatory newborn screening; research with discrete and insular populations; and others. Conference papers eventually will be published as an edited volume with a major academic press. 

For a full agenda and to register for this event, visit our website. 

 

This event is a collaboration between The Center for Child Health and Policy at Case Western Reserve University and  University Hospitals Rainbow Babies & Children's Hospital; the  Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School; the Multi-Regional Clinical Trials Center of Harvard and Brigham and Women's Hospital; and  Harvard Catalyst | The Harvard Clinical and Translational Science Center. It is supported by funding from the National Human Genome Research Institute.