Please join us to make a difference in the lives of the
Gray girls and those affected by Batten Disease

Gordon and Kristen Gray, have recently been told that both of their children Charlotte (age 4) and Gwenyth (age 2) have a rare  

neurodegenerative disorder called Batten disease.

It is expected that both Charlotte and Gwenyth will become blind,

immobile and cognitively impaired, and then die between the ages of 6 to 12.   For a parent, this is unimaginable.  

 

I am asking you today to help give Charlotte, Gwenyth and the thousands of other children affected by Batten's disease a fighting chance.

A fundraiser is being held on June 25th at the Atom Factory in Culver City from 7-10pm, to accelerate the research needed to identify treatment options and potentially a cure for this horrible disease so no other family will have to face this devastating illness.

 

What can you do to help:

 

  • volunteer your time at the fundraiser for 6 hours on June 25
  • donate to the foundation 
  • buy tickets to the event (LIMITED TO 2 PER PERSON)
  • register for the auction (no need to be present) 
  • email us with your ideas, questions or auction items
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