Learn, Integrate, Collaborate

WINTER 2015

Edition 1

Welcome to FWGBD's First Quarterly e-Newsletter!

Since our inception in 2010, FWGBD has been become an important voice in the education of healthcare providers about the fact that undiagnosed, untreated blood disorders in women and girls have medical consequences and unique issues at every life stage. Our popular live symposia at leading medical society meetings, including ASH, NASPAG, and THSNA, and timely webinars by top faculty have helped shape the conversation with their demonstration for the need to educate providers about the consequences and effects of blood disorders, as well as the benefits of proper and timely diagnosis, effective treatments and how the adoption of best practices impacts the lives of women and girls with blood disorders.

Now, we want our reach to grow even larger. Understanding that everyone who works with women and girls with blood disorders needs to have access to timely information and continuing education opportunities, we have created our new quarterly e-Newsletter to foster the development of educated and empowered healthcare professionals who can work with us to improve the lives of women and girls with blood disorders. This e-newseltter will provide quick links to the latest news, upcoming events, and key information related to blood disorders among women and girls, and FWGBD.

We hope you enjoy our first e-Newsletter, and we thank you for joining us.

Available Now

Friday Satellite Symposium Preceding the 56th ASH Annual Meeting

The Global Impact of Anemia on Women and Girls: SCD, Malaria, Obstetric Hemorrhage, Inherited Bleeding Disorders. Six faculty from several disciplines address the areas of prevention and treatment, including a review of current diagnostic tools and effective treatment strategies that are in use or under development. International networks available to capture information about these issues and to deliver appropriate healthcare to remote or underserved communities child are also described. View this symposium HERE.

Reproductive Issues in Women with Bleeding Disorders, presented by Dr. Andra H. James

In this latest Webinar from the CDC, Dr. Andra H. James discusses the key issues for women of reproductive age who have bleeding disorders. View her slides

HERE.

View our Most Recent Webinar

Women and Bleeding: Challenges of Hemophilia Carriage, VWD, and other Rare Bleeding Disorders

In this Webinar, Dr. Roshni Kulkarni and Dr. Robert Sidonio, Jr., provide evidence-based, practical information on the signs and symptoms of bleeding disorders, specifically Hemophilia Carriage, VWD, and other rare bleeding disorders, in women and girls. It originally aired on February 11, 2015.

View this Webinar HERE.

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Read These Articles

(1) Reproductive Issues in Sickle Cell Disease, by Dr. Kim Smith-Whitley

An interesting article by Dr. Kim Smith-Whitley was recently published in Blood (www.bloodjournal.org), the official journal of the American Society of Hematology. Read this article HERE.

(2) Prevention and Treatment of Venous Thromboembolism in Pregnancy in Patients with Hereditary Antithrombin Deficiency, by Dr. Andra James, Dr. Barbara Konkle and Dr. Kenneth Bauer

Data from six pregnant subjects who were enrolled in a clinical trial of antithrombin (AT) concentrate, along with a discussion of other published case series and case reports are provided. Authors also provide general guidance for the use of AT concentrate for inherited AT deficiency in pregnancy. Read more about this article HERE.

Join the WGBD LAN

FWGBD's First Learning Action Network!

Learn how members of our WGBD LAN are making a difference in the care of women and girls across the country, and how you

can join HERE.

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Save the Date: May 18-19, 2015

The First On-Site WGBD LAN Education Meeting

In 2014, FWGBD received funding to host an in-person meeting for our WGBD LAN members and other experts at Texas Children's Hematology Center/Texas Children's Pediatric and Adolescent Gynecology (TCH) Baylor. This meeting

will take place May 18-19, 2015. Professionals who are members of our WGBD LAN, or who are working at or starting a Young Women's or Women'a Bleeding Disorder Clinic will be invited to attend this meeting to learn more about creating a clinic of excellence. This meeting is by invitation only; however, if you are interested a small number of seats may be available. For more information, please email Kerry Funkhouser, Director of Education.