|
|
 |
 |
|
Thank you for reading our February issue of Epilepsy News. We're dedicated to providing our readers with informative, exciting and interesting news related to epilepsy in NJ.
For a larger look at trainings happening around NJ, don't forget to check out The Training Calendar. If you have feedback regarding our e-zine or would like to contribute content, let us know!
|
| |
|
|
|
|
|
|
|
4th Annual Paint the Pony March 22nd
|
  Join EFNJ for our 4th Annual Paint the Pony Purple event held at The Stone Pony in Asbury Park. We will have entertainment, refreshments and definitely a lot of purple! OPEN TO ALL AGES!
When: Sunday, March 22, 20151:00 p.m. - 5:00 p.m.Where: The Stone Pony 913 Ocean Ave. Asbury Park, NJ 07712Contact: Dana Leopardi (609) 392-4900 ext. 119 [email protected]
|
| |
|
| |
|
The Epilepsy Foundation of New Jersey is now accepting applications for our annual scholarship program for New Jersey high school seniors who have epilepsy. We anticipate offering at least three $1,000 scholarships this year.
New Jersey high school seniors with epilepsy who plan to attend a college or university are eligible. Academic achievement, participation in activities and financial need will be considered. The extent of a student's disability(s) will be taken into account as well, so that s/he need not be near the top of her/his class to qualify. Final awards will be made by the Epilepsy Foundation of New Jersey, which reserves the right not to make any awards.
Scholarship Applications and supporting documents are due by May 1, 2015. Should you have any questions, please contact Andrea Racioppi at (800)336-5843 or by email at [email protected].
|
| |
|
|
Northeast Regional Epilepsy Group National Walk Travel Fund
|
If you are interested in attending the National Walk for Epilepsy in Washington, D.C. on April 11, 2015 but need assistance in paying for hotel or transportation from New Jersey (train ticket, bus ticket, or gas mileage), please contact Andrea Racioppi at 800.336.5843 or [email protected].
The Northeast Regional Epilepsy Group has generously donated funding to help assist those with Epilepsy to get to and from the National Walk on April 11, 2015. Funding is only for those with Epilepsy and for travel from and to New Jersey. This funding will be distributed on a first come first serve basis and the deadline to make a request is April 3rd. Once approved you will be reimbursed after the walk, a bus or train receipt is required. In order to maximize the number of individuals that benefit from this funding, allowance per person has been set according to estimated travel costs.
A special thank you to the Northeast Regional Epilepsy Group for providing the travel fund for the fifth year in a row!
|
| |
|
| FRN Health Insurance Navigator Program |
According to a report released by the Department of Health and Human Services on December 30, 2014, 105,306 people in New Jersey selected plans through the Health Insurance Marketplace. About 82 percent of New Jerseyans who selected health insurance plans in the first month of open enrollment were determined eligible for financial assistance to lower their month premiums, compared to 79 percent who selected plans last over a similar period last year.
Do you need affordable health insurance? Between November 15, 2014 and February 15, 2015 you can apply for coverage through the Health Insurance Marketplace, which allows you to compare plans and apply online.
If you would like further assistance with discovering what options maybe available to you during Open Enrollment, FRN has trained navigators to answer your questions and assist you in applying. Navigators can also help you with exemptions to the marketplace, appeals and NJ Family Care Applications (Medicaid).
During Open Enrollment FRN Navigators will be at the following locations: Click here
|
| |
|
|
Project Healthy Bones for Epilepsy: A Research and Wellness Program
|
Project Healthy Bones (PHB) is a 24 week exercise and education program for older men and women who have osteoporosis or are at risk of developing the condition. It is based on Tufts University Research that shows strength training exercises helps preserve bone density. PHB was developed by the NJ Department of Health and Senior Services alongside physical therapists specializing in osteoporosis. Professor Mary Wagner has initiated a Project Healthy Bones class to meet once a week, specifically tailored to patients with epilepsy. More information
Our program's sessions will be on Fridays from 6:007:15 PM at Robert Wood Johnson Fitness Center, in the Community Education Room. (Day and time may change based on best time for group)
Address:
100 Kirkpatrick Street, 2nd floor (Suite #201)
New Brunswick, NJ 08901
732-873-1222
Parking: Is Free! Entrance to the Wellness Plaza Parking Deck is on Paterson Street between Joyce Kilmer and Kirk Patrick Street
Cost: Class and materials are free. Participants should purchase their own weights.
For more information, Contact:
Professor Mary Wagner, Pharm.D. by Email: [email protected] or leave a message with Janice Weinstein at 848-445-6815
Sandhya Balachandar by Email: [email protected]
|
| |
|
|
Access to Online Trainings
|
Are you a school nurse or other professional in a school setting who would like to be educated about epilepsy? EFNJ has made these trainings available online for your convenience. Our 3 hour School Nurse training assists the school nurse with better supporting students with seizures and prepares the nurse to educate other school personnel about epilepsy. The School Personnel training is a 1 hour presentation for school staff that provides basic seizure recognition and first aid information. Please visit the link here to view these trainings:
|
| |
|
|
Parents and Professionals
|
Are you a parent of a child or teenager with epilepsy? Do you think your child's pediatrician would like to be a part of a project that is focused on improving resources and access to quality care for children and youth with epilepsy in New Jersey. Medical professionals in the pediatric field are welcome to contact us with interest about this pediatric epilepsy awareness project too. Please contact Jenna Andolora at [email protected] or 800.336.5843.
|
| |
|
|
Beneficial Effects of Surgery for Epilepsy are Sustained for More Than 15 Years
|
Medical News Today
Brain surgery for otherwise hard-to-treat epilepsy is effective for up to 15 years, according to a new survey by Henry Ford Hospital physicians.
"These encouraging findings will be valuable during the decision-making process and counseling on different aspects of care in patients with epilepsy," says Vibhangini S. Wasade, M.D., a neurologist at Henry Ford Hospital and lead author of the study.
The study is published in the February issue of Epilepsy & Behavior. A copy of the study is available online.
The findings were based on a telephone survey of patients who had a portion of their brains surgically removed, or resected, to treat localization-related epilepsy at Henry Ford during an 18-year period.
"Most previous studies looked at seizure and psychosocial outcomes at 2 to 5 years after surgery, and a few for up to 10 years," Dr. Wasade says. "We aimed to assess the long-term outcomes - up to 15 years - at our epilepsy center." Continue reading
|
| |
|
| |
|
|
|
