Updated Research & Events

Best of Broadway Event on June 4th

Support DTRF by attending our

Best of Broadway Event

on June 4th

in Suffern, NY!

Purchase tic kets here .

Dr. Aimee Crago receives 750K grant from American Cancer Society

Congratulations to Dr. Aimee Crago from Sloan Kettering who was recently awarded a $750K, 5 year grant for her current study, "Oncogenic effects of activated beta-catenin in desmoid fibromatosis".

Read a summary of her study here.

A Study of BBI608 Administered with Paclitaxel in Adult Patients with Advanced Malignancies

Please be aware that this study is currently recruiting patients. Although not specifically for desmoid patients, it is a Phase 1 study of a drug that hits one of the pathways that may be important in desmoids, combined with p aclitaxel. Thus for desmoids, the patient should be a chemo candidate.

This study is open at a number of locations across the country. Dr. Cote at Mass General "would like to weigh in on whether chemo is appropriate" if a patient is planning on contacting another location. The reason for this is that investigators at other institutions are not sarcoma oncologists.

Information on this study along with Dr. Cote's contact information can be found here.

Join us for Lap4Life in Newburgh, NY

Lap 4 Life is a non- profit organization created to raise money and

awareness for desmoid tumors and organ transplant research. Eleven years ago, at the age of 30, Maddalena Reade's brother Angelo was

affected by a desmoid tumor. After nine years of medical treatment and multiple surgeries with subsequent complications he was left with few options. A final attempt to remove his large desmoid required resection of his entire small intestine. Following this, he could no longer eat and was reliant on intravenous nutrition.

Lap 4 Life Six months later he received an intestinal transplant, a rare and risky procedure. Seven weeks after his transplant, he returned home to resume his life as a loving father and husband. Unfortunately, one week after being home, at the age of 39, he succumbed to an illness that his weakened immune system could not ward off.

In celebration of Angelo's legacy, mark your calendar for the 7th Annual Lap4Life at Chadwick Lake in Newburgh, NY on June 20, 2015. This is a community celebration for the family, including a 4 mile run, walk and kids' fun run.

Register here today!

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This email is intended solely to provide general information for your reference only. Any information contained herein is not intended as medical advice for any individual problem, or as a diagnosis, treatment plan, or recommendation for a particular course of action, and should not be used as a substitute for professional medical advice and services. Please do not delay in obtaining professional medical advice regarding your individual circumstances.