Bank of America Chicago Marathon October 11, 2015
Calling all marathon runners!!
Its that time of year to register for the
Bank of America Chicago Marathon. We are currently looking for runners to
"Run For Those Who Roll"
in support of SCIA. For guaranteed entry to the marathon, contact us at
sciinjury@aol.com
.
We would love to have you on our team!
If you would like to make a donation in support of Team SCIA, please use the link below. Thank you!
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SCIA Spring Seminar:
Spinal Cord Injury and Chronic Pain
The Spinal Cord Injury Association of Illinois is presenting a seminar,
Spinal Cord Injury and Chronic Pain, on May 30, 2015 at Marianjoy Rehabilitation Hospital, in Wheaton, IL.
The seminar is for clinicians who will be able to earn up to four continuing education credits as well as those personally impacted by SCI.
Spinal Cord Injury and Chronic Pain will include:
Chronic Pain and SCI, Ray Lee, MD Schwab Rehabilitation Hospital
Smart Wheel and Pressure Mapping Clinic, Kathrina K. Prostka, PT, ATP
Marianjoy Rehabilitation Hospital
Development of Effective Locomotor Training Strategies for Individuals with Morot Incomplete Spinal Cord Injury, T. George Hornby, PT, PhD Rehabilitation Institute of Chicago
Effects of Physiological Stressors (pain, cold exercise) and volitional and spastic activity in patients with motor incomplete SCI, T. George Hornby, PT, PhD Rehabilitation Institute of Chicago
Tours of MARTI Center
Chronic pain is a common and terrible complication of spinal cord injury. Therefore, we expect the seminar to be of great interest to both clinicians and persons with injuries.
**If you are interested in sponsoring this seminar, and/or exhibiting information on products and services that help those who are injured, please contact us at sciinjury@aol.com.
Watch for more information on registration for the seminar in the next few weeks!
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Two Excellent Articles by Model Systems Knowledge Translation Center
Spinal Cord Injury (SCI)
Resource Highlight: Bowel Function after Spinal Cord Injury
The MSKTC has posted the new factsheet, Bowel Function after Spinal Cord Injury. This factsheet was developed by Gianna M. Rodriguez, M.D., investigator of the University of Michigan Spinal Cord Injury Model System (U-M SCIMS) in collaboration with the MSKTC. The factsheet is designed to be a starting point for understanding the functions of the spinal cord and how those functions may change after injury. The factsheet is available on the MSKTC website and may be reproduced and distributed freely with appropriate attribution. Read more here.
Model Systems Work Published in the JAMA Psychiatry
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Bank of America Chicago Marathon Registration
March 10-April 21, 2015
Accessibility Summit
April 17-18, 2015
Washington D.C.
Backbones 5K
April 26, 2015
Seminar @ Marianjoy
Saturday, May 30, 2015
Details to follow soon!
Save The Date
Roll On Capital Hill
June 7-10, 2015
SCIA Golf Outing
July 29, 2015
Glenneagles Country Club
Bank of America Chicago Marathon
October 11, 2015
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Accessible 2005 Ford E150 Econo Club Wagon w. Braun automatic lift.
41,500 miles
$14,000
Runs extremely well!
Contact Mary Munoz-Mansfield
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A wheelchair accessible pontoon boat.
Please contact Matt at
217-622-4580
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Interested in getting
more involved with
SCIA? Become a member of our association!
Are you Spinal Cord
injured? Membership is
free to those who are
spinal cord injured.
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The Miami Project to Cure Paralysis: Pain after Spinal Cord Injury
The Miami Project to Cure Paraylsis is conducting a web-based survey regarding day-to-day exeriences of people living with spinal cord injury (SCI) and chronic pain. In most cases pain remains a major problem, despite our best treatments.
The purpose of this study is to learn from the perspectives of people who are living with this pain. The information regarding tghe personal experiences of living with SCI and chronic pain is neeed to improve the understanding and management of this difficult condition, and will benefit the general SCI community including Veterans their families and caregivers.
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Segmental Control By The Cord
The cord has numerous neurological levels each sending out spinal roots into the body. These roots send and receive information and pass through the gaps between vertebra of the spine.
The cord levels are described as being either cervical, thoracic, lumbar and sacral as shown in the figure on the right. The body map below illustrates which parts of the body each level affects.
Injury in the cervical region of the cord causes loss or disruption of function from that point down. Less of the body is affected if the injury occurs lower down. It is clear that significant damage at most positions of the cord will affect functions such as bladder, bowel and sexual function.
http://www.spinal-research.org/segmental-control-by-the-cord/
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Spinal Cord Injury in the Child and Young Adult
A Textbook edited by Lawrence Vogel, a Member of SCIA Medical Advisory Board
Twenty-nine years ago, a 3 year old boy was run over by a bicycle while playing near the beach. He sustained a spinal cord injury (SCI) and suffered tetraplegia. In the years after the incident, he attended numerous rehabilitation and medical facilities and overcame one complication after another. Today, he is married, a father of two children, and working as a computer programmer. His story shows what is possible when a child or young adult sustains an SCI. However, his cannot happen without a lot of dedicated care, as demonstrated clearly in the story of Bridget Harrington in the first chapter of this book.
Spinal Cord Injury in the Child and Young Adult is a proper and timely addition to The Child with a Spinal Cord Injury, published in 1996 and edited by Randal Betz and MJ Mulcahey, who, with Lawrence Vogel and Kathy Zebracki, share he editorship of this new volume.
Real progress has been made in improving the knowledge and understanding of SCI in recent decades, and this book contains information on all aspects of comprehensive care.
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Disability and Sexuality panel Discussion
The University of Illinois at Chicago's, (UIC) department of disability and human development, Bodies of Work and Access Living will present a panel discussion on "everything you always wanted to know about disability and sex, but were too afraid to ask."
Please fill out this survey and send us your questions about disability and sex!
Stay tuned for event announcement as it approaches! Please mark your calendar for April 24th 6:30-8:00.
For more information please contact Sandie Yi,
Graduate Assistant
Bodies of Work: A Network of Disability Arts and Culture
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SCIA offers
Think First, a national brain and SCI prevention program. Volunteers who are spinal cord injured go to local schools, libraries, community centers, and other groups to offer prevention information and discuss their personal experiences.The program is presented free of charge. If you would like to learn more, or schedule a program, contact SCIA.
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Calling all Amazon Shoppers!
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New Book Touches on Spinal Cord Injury and Domestic Violence
Show Me Your Face,
by Goldie Gendler Silverman, is a new book that represents the experience of living with a disability. The back of the book has a well written review that describes the book as a well paced, compelling novel of attraction, emotional abuse, and self-discovery, all set against a backdrop of disability.
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Research Studies Available
IIT Wheelchair Study
Dr.
Lee and Dr. Krishnamurthy from the Illinois Institute of Technology are conducting a research study for individuals with SCI who are currently using a wheelchair, but have some interest in power assisted wheelchairs. The focus group of 3-4 people with be scheduled sometime in March and April for about 90 minutes at the Illinois Institute of Technology (31st and State Street) in Chicago. Participants will receive compensation for their time and commute. For more information contact Eun-Jeong Lee at elee20@itt.edu or 312-567-5202
RIC Controlling Assistive Devices Study The Rehabilitation Institute of Chicago (RIC) is recruiting spinal cord injured subjects for a study designed to test new methods for controlling assistive devices. Participants will sit comfortably in a wheelchair and will pilot a cursor on a computer screen and play videogames using their shoulders. In addition, they will also drive a powered wheelchair around using shoulder movements or with a joystick. For more information contact Farnaz Abdollahi at 312-238-1650 or fabdollahi@ric.org. RIC Wheelchair Skills Study RIC is conducting a research to determine the effect of a wheelchair skills training program on outcomes in person with spinal cord injury. People will be asked to attend 4 group training sessions. The sessions will last up to 120 minutes each. They will focus on wheelchair skills such as learning how to hop a curb, go down a steep ramp, or descend stairs in a wheelchair, as well as any personal goals people have. Participants will be compensated. For more information contact Brian Weiland at 312-238-2802. RIC Maintenance Study RIC is conducting research to determine the effect of a wheelchair maintenance training program on outcomes in persons with spinal cord injury. People will be asked to attend 2 group training sessions that will last up to 120 minutes each. People will also be asked to complete a series of questionnaires. Participants will receive compensation. Contact Brian Weiland at 312-238-2802 for more information.
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SCI Support Groups:
for persons with injuries & families
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Advocate Christ Medical Center
4440 W. 95th Street
Oak Lawn, IL 60453
Rehab Gym - Room 026S Ground Floor
Tuesday, April 28, 2015 @ 5:00pm
Contact Mercedes Rauen at SCIA
Marianjoy Rehabilitation Hosptial
26W171 Roosevelt Road
3rd Floor Gym
Wheaton, IL 60187
Support group is back!
Tuesday April 28, 2015 6:00-7:30pm
Contact Monica Blaauw for meeting dates and locations
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Hope Clinic Support Group
Sponsored by United Access
2924 N. Dirksen Pkwy
Springfield, IL
Contact Christie Davis for more information
Cross Disability Support Group
for various disabilities
Memorial Medical Center
701 North First Street
Springfield, IL 62702
Room B 149 Springfield Conference Room
Second Saturday of the month
1:00-3:00 pm
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The SCIA newsletter is an informational resource only. SCIA neither endorses nor recommends services provided by any of the sources listed therein.
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