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Issue: July 2013
Welcome to Epilepsy News brought to you by the Epilepsy Foundation of New Jersey. We pride ourselves in sending you the most up-to-date information about epilepsy events, conferences, and issues that are important to you.
Be sure to check this email, our website and thetrainingcalendar.org for information on rescheduled events.
You may also find an archive of past issues and additional information at www.efnj.com | |
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Attention New Jersey Residents! Please Help EFNJ With Its Statewide Survey
This summer, the Epilepsy Foundation of NJ is working on a project which focuses on gathering information about adults with epilepsy in New Jersey. We are interested in learning about how treatment of epilepsy might affect the quality of life in individuals ages 18 and up with epilepsy. Involvement in the project involves filling out a brief and simple 10-15 minute Epilepsy Survey. (If interested, please click on the Epilepsy Survey. Please scan and email the completed survey to [email protected] or fax to 609.392.5621) Survey results will help us pinpoint how a person's quality of life is affected by epilepsy and what other resources we can potentially offer to make life easier for people living with epilepsy. We thank you for your time and participation!
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Epilepsy Foundation of NJ
is a state-wide, non-profit charitable agency dedicated to helping to improve the quality of life for people affected by epilepsy and their loved ones. More "About Us"
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Our affiliates:
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North Jersey Golf Classic- Join Us
North Jersey Golf Classic- Monday, July 29, 2013
Upper Montclair Country Club, Clifton, NJ
The North Jersey Golf Classic provides numerous opportunities for you to support this event. All proceeds will enable EFNJ to continue offering programs and services to more than 129,000 people in New Jersey with epilepsy and developmental disabilities. EFNJ is proud to announce that 96 cents of every dollar raised goes directly to over 50 programs and services across New Jersey. Your participation and sponsorship of this golf outing support EFNJ's efforts to ensure that all people with developmental disabilities have the opportunity to achieve their fullest potential.
Download or Print Electronic Invitation
The 37th Annual Epilepsy Foundation of New Jersey North Jersey Golf Classic includes:
Greens fees for 18 challenging holes of golf
Golf cart, caddie, and gratuities
Lunch and awards dinner
Refreshments on the course
Goody bags for each participant
Complimentary driving range
Tournament Prizes
Hole-in-one contests for an automobile
Souvenir photograph for each foursome
Auction
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Community Impact Boards Being Developed for EFNJ
To achieve EFNJ's mission, we will developing community impact boards. These boards will be comprised of individuals that will serve and advocate for people with epilepsy in New Jersey. This will be a grassroots effort from those dedicated to bringing action and awareness to their community to be able to connect our resources to those who need them. Never underestimate the power that one individual can make on his/her community of family, friends, and neighbors. We will keep you posted on the progress of these boards. The first group will be in Monmouth and Ocean Counties. If you are interested and have a few hours to contribute throughout the year, contact Andrea Racioppi at [email protected].
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Gov. Signs Epilepsy Task Force Extension
Gov. Christie on Thursday signed into law S2353 extending the term of the NJ Epilepsy Task Force by one year and adding an additional member from the NJ Association of School Nurses.
The bill was introduced last November as the term of the existing task force was expiring. Sen. Fred Madden and Sen. Diane Allen and Assemblyman Herb Conaway Jr. were Primary Sponsors with Assemblywomen Dawn Addiego and Shavonda Sumter were co-sponsors.
The bill passed the State Senate 37-0 and the State Assembly 75-0.
The Task Force should resume meeting soon. If there are issues that you would like the Task Force to consider this year, email Andrea Racioppi at [email protected].
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Get the FREE seizure-management training you need, online or in person
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Earn 3.2 continuing education units
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Learn how to teach others to support students with epilepsy
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As a school nurse, you're often a first responder when it comes to managing a seizure in school. More than 315,000 American students have epilepsy, and another 45,000 are diagnosed each year. It's almost certain at least one student in your school has epilepsy. Are you ready to manage that student's in-school care...and react when he or she has a seizure?
To help you prepare, the Epilepsy Foundation has created Managing Students with Seizures: A Training for School Nurses. This training for school nurses is available for FREE, either online or in a classroom setting through our Foundation affiliate network. When you complete the 3-hour course, you'll earn 3.2 continuing education units. You'll also receive a Quick Reference Guide and a Seizure Training for School Personnel toolkit.
The Managing Students with Seizures course is designed to give you information, strategies and resources to better manage students with seizures. Divided into three 1-hour sections, the program will train you to:
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RECOGNIZE seizure activity and its impact on students
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ENSURE appropriate seizure first aid is given while minimizing stigma
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UNDERSTAND current treatment options and their side effects
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COORDINATE ongoing treatment with the student, parents, the school and the health care team
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TRAIN teachers and other personnel to recognize and manage seizures
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CREATE an environment in which the student continues to achieve educational goals
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Sign Up Today!
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School Nurse Training Program
The School Nurse Training Program is a continuing education training program designed to provide the school nurse with information, strategies and resources that will enable him/her to better manage the student with seizures by: supporting positive treatment outcomes, maximizing educational and developmental opportunities, as well as ensuring a safe and supportive environment. Each training is 3.5 hours long and FREE for all school nurses. Nurses will receive 3.2 continuing education units after completing the training.
To schedule, contact Jenna Andolora to schedule 800.336.5843 or [email protected]
Click here to view our Spring/Summer training dates and locations.
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Bounce Out the Stigma Basketball Camp
 
Bounce Out The Stigma basketball camp is a partnership of Mighty Mike Basketball and The Family Resource Network. The goal of this collaboration is to provide children and young people, with developmental disabilities a chance to learn using basketball as the primary vehicle to overcome obstacles in life. Our purpose is for children to gain confidence and "bounce-out" their "limitations" to empower themselves.
Summer 2013 Camp Dates
August 5th through 9th: Saint Nicholas Greek Church; 467 Grand View Ave. Wyckoff, NJ
August 12th through 16th: ECLC School; 21 Lum Ave. Chatham, NJ
To learn more about Mighty Mike Simmel, visit www.bounceoutthestigma.org.
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Camp Counselor Positions Available
The Epilepsy Foundation of NJ (EFNJ) is conducting another year of its annual summer camp program- Camp NOVA! Camp NOVA's primary purpose is to provide a social and interactive camping experience for teens and young adults with epilepsy and other developmental disabilities. It also provides respite to family members and caregivers. Planned program activities will include a variety of physical and recreational opportunities such as arts and crafts, sports, music, swimming, boating, fishing and evening events.
The Epilepsy Foundation of NJ is looking to employ counselors to live and work at the camp for this unique and rewarding experience. The salary is approximately $300 - $450. EFNJ is seeking mature, motivated, individuals who will be responsible for the campers. The counselors will be responsible for campers and participation in camp activities and will report to the Director.
Location: Linwood MacDonald YMCA in Branchville, NJ
Dates: August 3-10, 2013
Each Counselor will be required to participate in staff orientation on August 3, 2013, as well as a mandantory training webinar on July 2nd at 7PM EST (See details below). The applicant should have experience with children with special needs or a strong interest in learning.
For more information on how to apply, please contact Jenna Andolora at 800.336.5843 or via email at
[email protected]
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Super NOVA!!
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North Brunswick Barbecue Raises $3,500
The Michael Meehan Annual Barbecue Fundraiser was held on June 15th from 1pm-7pm at the North Brunswick Fire Company. The event raised $3,500 to support EFNJ's Emergency Medication Program.
The event remembers Michael Meehan a Kendall Park resident who died in 2006 at the age of 26. Over the years the event has raised over $20,000 to support EFNJ's Emergency Medication Program.
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"Studio E" Art Therapy Program to be Held for 2nd Year in NJ
The Studio E Art Therapy Project will be held again for the second year. Studio E is an art therapy program that is sponsored by Lundbeck pharmaceuticals. Last year we held only one six part session session in Brick for teens. This year we will be holding that session and also another in Parsippany for adults, 18 and older, with Epilepsy. The sessions will be 3 hours once a week for 6 weeks. If you are interested in attending, please contact Jenna Andolora at [email protected] or 800.336.5843 or Holly Shuart for Parsippany at [email protected] or 973-244-0850. Space is limited.
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Planned Giving
Planned gifts, for example bequests in your Will, are the ultimate expression of your commitment and caring - an opportunity to invest in the shared vision of a world in which everyone with epilepsy enjoys the freedom to participate fully in life.
While you feel strongly about supporting our critical work, we realize that your primary concern is for the financial security of your family and other loved ones. Fortunately, there are many ways for you to put your family first and make a gift to the Epilepsy Foundation of New Jersey.
A variety of assets and investment vehicles qualify as planned gifts, each offering unique benefits for you. Be sure to consult your legal and financial advisors to select the option that best meets your financial planning objectives. Your planned gift gives you a special connection with the Epilepsy Foundation of New Jersey. You will help those touched by epilepsy-for now and for years to come.
We hope you'll find our online information helpful as you discover the charitable gift that's right for you.
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