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Issue: October 2013
Welcome to Epilepsy News brought to you by the Epilepsy Foundation of New Jersey. We pride ourselves in sending you the most up-to-date information about epilepsy events, conferences, and issues that are important to you.
Be sure to check this email, our website and thetrainingcalendar.org for information on rescheduled events.
You may also find an archive of past issues and additional information at www.efnj.com | |
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Are You a Parent of a Child with Epilepsy?
In the upcoming months, EFNJ will be holding several parent focus groups throughout the state. In these focus groups we will be gathering information on programs and services that are needed in NJ. We would love your input. If you are a NJ parent of a child with epilepsy age 21 or younger please contact Jenna Andolora at 800.336.5843 or [email protected] with interest in participating.
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Epilepsy Foundation of NJ
is a state-wide, non-profit charitable agency dedicated to helping to improve the quality of life for people affected by epilepsy and their loved ones. More "About Us"
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Our affiliates:
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EFNJ and NEREG to Host Several Conferences
The Epilepsy Foundation of New Jersey (EFNJ) will be partnering with the Northeast Regional Epilepsy Group (NEREG) on several upcoming conferences. The conferences will over up to date information on advances in Epilepsy.
Click here to register:
October 5, 2013
What You Need to Know if Epilepsy has Touched Your Life - October 5 - New Brunswick, NJ
November 8, 2013
What You Need to Know if Epilepsy has Touched Your Life - November 8 - Hackensack, NJ
November 16, 2013
What You Need to Know if Epilepsy has Touched Your Life - November 16 - Jersey City, NJ
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Sunday, October 13, 2013
Roosevelt Park, Edison, NJ
Registration: 10:30am-12pm
Walk: 12pm
Family Fun Day: 1pm
Join The Family Resource Network and its affiliates as we raise awareness and dollars to support existing programs and expansion projects. This will be a fun filled day for families, friends and community partners to walk in support of their loved ones. A casual walk along a scenic lake, entertainment and refreshments will be just a few of the days highlights.
Please join us in our continuing efforts to provide low-cost quality services to New Jersey families living with developmental disabilities and chronic illness.
click here to start a team.
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EpilepsyFoundation/Family Resource Network Annual Awards Dinner October 23, 2013
FRN's Annual Awards Dinner is scheduled for Wednesday, October 23, 2013 with special guest Dean J. Paranicas, President/ CEO, HealthCare Institute of NJ. Click here to view/print invitation.
One of the honorees will be Eric Miller. Eric Miller has raised Epilepsy Awareness worldwide through his Candlelight Concert Series and his Summit of Mount Kilimanjaro.
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Candlelight Concerts for Epilepsy Awareness
The Candlelight Concert for Epilepsy Awareness is a concert series to raise awareness and spread the facts about epilepsy. Grown from a house concert series in Pennington NJ, they are now held at Trinity United Methodist in Ewing, a very wonderful space with amazing acoustics! Shows usually last about 2 1/2 hours including the opening set. There is usually a brief speaker talking about epilepsy, and the Epilepsy Foundation of New Jersey is on hand with information & to accept donations. Or, you can simply come & enjoy the music! ALL ARE WELCOME!!
Collective Soul's Ed Roland & Sweet Tea Project
Monday October 17th, 2013, 7pm
Trinity United Methodist
1985 Pennington Rd.
Ewing, NJ
Three legendary artists performing all their hits on one stage for one night only.
Marshall Crenshaw
Jill Sobule
Freedy Johnson
Saturday October 19, 2013, 7pm
Trinity United Methodist
1985 Pennington Rd.
Ewing, NJ
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SAVE THE DATE...
The 3rd Annual Paint the Pony Purple will be held on March 30, 2014 at
The Stone Pony in Asbury Park!
More details to follow.
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IEP Review Clinic-
8 appointments left for this session
Presented by Attorneys from: Freeman Carolla Reisman & Gran LLC
Navigating the special education system can be confusing and daunting. Each spring brings new questions and concerns in regards to your child's Individualized Education Plan and sometimes parents need the advice of a professional.
Hillary Freeman, Esq. will offer her personal and professional expertise in special education law, while providing families a FREE 20 minute private IEP review session. This is a valuable opportunity for families who have questions or concerns related to their child's Individual Education Plan.
Wednesday, October 16, 2013
Host Location:
Family Based Services Association of NJ
6 Industrial Way West, Suite D
Eatontown, NJ 07724
View flyer
An individual session will be scheduled between 6:00 p.m. and 9:00 p.m. based on availability. Please make sure to bring your most recent IEP, evaluations, and a list of questions that you may have regarding your child's educational plan.
Registration is REQUIRED for an appointment. Participation is limited to the first nine families who register. Please contact Cinaida Anthony at 732-542-4502 to reserve your individual time.
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School Nurse Training Program
The School Nurse Training Program is a continuing education training program designed to provide the school nurse with information, strategies and resources that will enable him/her to better manage the student with seizures by: supporting positive treatment outcomes, maximizing educational and developmental opportunities, as well as ensuring a safe and supportive environment. Each training is 3.5 hours long and FREE for all school nurses. Nurses will receive 3.2 continuing education units after completing the training.
To schedule, contact Jenna Andolora to schedule 800.336.5843 or [email protected]
Click here to view our Spring/Summer training dates and locations.
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FRN is Looking for Children and/or Adults With and Without Disabilities Who Have an Interest in Cooking
FRN Food Network has had great success in starting several local Cooking Classes available to various ages throughout the state. We are currently in Morris and Ocean Counties. We are looking to expand our efforts but are looking to see where the interest is. Cooking Classes include a safe, fun environment in a kitchen setting under the direction of certified instructor. Kitchen instruction is age appropriate and is based on input and goals of the individuals who attend.
Please contact Deb O'Chat at 732-262-8020 if you are interested in having us start a cookin club in your area.
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Brain Study Uncovers Vital Clue in Bid to Beat Epilepsy-Role Played by Protein BDNJ Identified
People with epilepsy could be helped by new research into the way a key molecule controls brain activity during a seizure.
Researchers have identified the role played by a protein - called BDNF - and say the discovery could lead to new drugs that calm the symptoms of epileptic seizures.
Scientists analyzed the way cells communicate when the brain is most active - such as in epileptic seizures - when electrical signaling by the brain's neurons is increased.
They found that the BDNF molecule - which is known to be released in the brain during seizures - blocks a specific process known as activity-dependent bulk endocytosis (ABDE).
continue reading
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