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 Family Fun Walk & Sanctioned 5K Saturday, October 18, 2014
Liberty State Park
Jersey City, NJ Benefiting The Epilepsy Foundation of New Jersey Join the Epilepsy Foundation of New Jersey as we raise awareness and dollars to provide education, recreation, and support to individuals living with epilepsy in New Jersey.
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FRN Marketplace Coming to Essex & Monmouth County
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 Visit the FRN Marketplace to experience the programs and services FRN has to offer children and adults with developmental disabilities.
- Interactive sessions with program staff
- Guide to children services (DCF) and adult services (DDD)
- Light refreshments
- Door prizes and giveaways
Essex County
Tuesday, September 30, 2014
4:00 PM to 7:00 PM
Livingston Community Center
204 Hillside Ave.
Livingston, NJ 07039
View flyer | Monmouth County
Tuesday, October 14, 2014
4:00 PM to 7:00 PM
Middletown Township Public Library
55 New Monmouth Road
Middletown, NJ 07748
View flyer |
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For most children there are many local opportunities for physical activity programs, however this is not always the case for children with epilepsy. "Get FIT Kids" is currently providing specialized fitness instruction and group programming to children with epilepsy and other developmental disabilities in the Red Bank area in a socially inclusive and safe environment. Weekly sessions are designed to build flexibility, balance and coordination while fostering listening and communication skills.
To register your child aged 5-12, please contact Adeola at 609-392-4900.
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Longtime Camp NOVA Camper Passes Away
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 Matt Dumser of Cherry Hill started coming to Camp NOVA when he was seven years old. This year he had a good camp week and had fewer seizures than usual. Matt passed away just weeks later from natural causes. He was twenty five. The family asked that a memorial contributions in lieu of flowers be directed to Camp Nova.
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 Asbury Park Press Eight years ago Kelly Pretz of Brielle was diagnosed with epilepsy after suffering a series of increasingly serious seizures. The 18 year old has been seizure-free off medication for three years now. Burt she came to support and connect with others affected by the neurological disorder. About 50 people affected by epilepsy and their families met at the Governor's Mansion for "Day at the Beach," on August 13, 2014, an event held by the Epilepsy Foundation of New Jersey. Continue reading
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Important Clue Found for Potential Treatments for Absence Seizures
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 Science Daily
Absence seizures are believed to be elicited by T-type calcium channels in the thalamic reticular nucleus of the brain that regulate influxes of calcium. These channels enable thalamic reticular nucleus neurons to generate burst firing, leading the neurons to enter a hyper-excited state.
In order to identify the relationship between burst firing and absence seizures, the researchers conducted an experiment to induce absence seizures in mice using gene targeting techniques to delete the T-type calcium channel CaV3.3. The results showed that mice that received a complete genetic deletion of the T-type calcium channel, which in turn suppressed burst firing in the thalamic reticular nucleus, exhibited an increased frequency of absence seizures. Continue reading
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Seizures and sudden death: When SUMO 'wrestles' potassium channels
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Science Daily
A gene crucial for brain and heart development may also be associated with sudden unexplained death in epilepsy (SUDEP), the most common cause of early mortality in epilepsy patients.
Scientists at The University of Texas MD Anderson Cancer Center have created a new animal model for SUDEP and have shown that mice who have a partial deficiency of the gene SENP2 (Sentrin/SUMO-specific protease 2) are more likely to develop spontaneous seizures and sudden death. The finding occurred when observing mice originally bred for studying a link between SENP2 deficiency and cancer.
"SENP2 is highly present in the hippocampus, a critical brain region for seizure genesis," said Edward Yeh, M.D., chair of cardiology at MD Anderson. "Understanding the genetic basis for SUDEP is crucial given that the rate of sudden death in epilepsy patients is 20-fold that of the general population, with SUDEP the most common epilepsy-related cause of death." Continue reading
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Burlington, Camden & Gloucester County Community Impact Board
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October 2, 2014
6pm-7:30pm
The Family Resource Network
208 White Horse Pike, Suite 8
Barrington, NJ 08007
Please call Andrea Racioppi or Jenna Andolora at 800-336-5843 for more information.
Community Impact Boards were designed in many parts of NJ to help individuals get involved with what FRN does as an agency. The major goals are raising awareness about FRN and our programs as well as to help raise funds to support those services.
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New Support Group in Middlesex County Starts Next Week
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Thursday September 18
6pm-7:30pm
Plainsboro Public Library, Community Room
9 Van Doren St.
Plainsboro, NJ 08536
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